Register Now!
The Congenital Muscle Disease International
Registry (CMDIR) was created to identify
the global congenital muscle disease population
for the purpose of raising awareness, standards
of care, clinical trials and in the future a
treatment or cure. This registry includes
congenital myopathy (all subtypes) and
congenital muscular dystrophy (all subtypes),
and registers through the limb girdle spectrum
for both disease groups.
Simply put, we will not be successful in finding
a treatment or cure unless we know who the
affected individuals are, what the diagnosis is
and how the disease is affecting the
individual.
Consider donating to the CMD BioBank- anytime a
person with congenital muscle disease gets blood
drawn you can arrange a simultaneous draw to
accelerate research. Contact: counselor@cmdir.org